October 3, 2006

Hello – Thank you so much for your continued prayers for Evi and our entire family. Evi is doing well and is slowly starting to feel better. After four weeks in the hospital, Evi’s nutritional levels are very poor. The last five days she has been on a constant nutritional IV and taking multiple supplements. On Monday she had her thirteenth visit to the O.R., and today they did her first daily dressing change in her hospital room. We are so excited that we will be able to do this in the hospital room from now on. Evi did great and tomorrow we are going to try and do it without any medicine. Please pray for her skin graft. There is one spot on her shin that does not appear to be healing like the rest of her leg. There is a possibility that she will have to have a second skin graft surgery in about 4 to 6 weeks. One of our biggest prayer requests for Evi is that she would be able to accomplish basic things like take medicine, brush her hair, get dressed, brush her teeth and those types of items. These basic tasks that used to be everyday items now are surrounded by crying and screaming. She has been touched for so long by everybody and wants nothing to do with these items. She has new combs, toothbrush that lights up and all sorts of cool things that do not help at all.

Evi’s started physical therapy last week and it is going fairly well. She has regained some strength in her “trunk” and can now sit up again. We have a little wheelchair and she loves to have daddy push her around the hospital. This week we are helping her to sit on a bench and working towards putting weight and standing on her good foot. There are a lot of milestones that we have to meet in PT before we can leave the hospital. So please pray for Evi and us as parents as we work hard to reach these goals. (Doctors say it will be at least two more weeks)

Thank you so much for your calls and e-mails. It is so encouraging to know that you are standing behind us during this journey.

I have also updated our photo web site at www.flickr.com/photos/hulls there is a section of photos of Evi’s journey this last month.

Love,

The Hulls Family